Namid's Blog

So, they finally released me from Cedars-Sinai Hospital (in LA) late yesterday, and we got home very late last night. EEG & MRI were normal. Which is good and bad. At least we know I don't have a brain tumor or anything. It is definitely the Lyme. The plan now is to get a neurologist here in town & get a GOOD infectious disease doc out in LA & go out there for treatments & so on.

Since I'll actually be home for the b-day (YAY...And with Doug! Double YAY), I have decided that I am going to skip 29, and just be 30 two years in a row. I think that I have the ability & right to make that call after this past weekend! LOL.

On the ride home last night, and all this morning, I've had a lot of time to think about things. For the first time in my life, I am actually paralyzed with fear. Mind you, I have come to accept my new life as a seizuring Lymie. It's just another obstacle in my life, but that's ok. But there's also a HUGE element of fear. I'm afraid to drive. God forbid I have a seizure while driving! Losing that independence is sad & scary. I'm also afraid to work. I don't want clients to see me seizure. What if I was holding an animal? What if I was trying to place a catheter?! What if I fell & hit my head or got injured because I seized at work? It's really very scary when you have start looking at your life in those terms.

My heart had always gone out to epileptics & others who had seizure disorders, but now I know the TRUE blessing of having a day without seizures! It may seem small, but appreciate those days! Laying in wait, never knowing if you're going to seizure, having that kind of fear - enjoy the fact that you don't have to live like that!

I started my new medication, so we'll see how I do on that. Supposedly, it's a really good drug. All I can do is wait & see.

So, that's life as of right now. I pray you are all well. Happy Monday, world!! :)