Hey all. As many of you know, I have my spinal tap later today. I'm supposed to be in bed for the rest of the afternoon today & all of tomorrow. If I can, I'll try to go on-line to at least up-date you, but I can't make any promises.
Additionally, we're moving Sunday (talk about timing!!). Due to my limited mobility (and ability to hook up my comp), as well as just the usual moving transition, it may be a few days before I'm back on-line. Please understand that I am not ignoring anyone, and that we are working hard to getting back to running at 100% again.
Please be patient with me for the next few days or so. You're all in my thoughts & prayers. I'll be in touch when I can.
Much love & many blessings to you all!
Friday, November 28, 2008
Thursday, November 27, 2008
Medical Up-date
I had my MRI Wednesday afternoon, and the Spinal Tap will be on Friday.
I have contacted a lawyer to begin the process of getting social security disability (it’s an absolute must at this point), as well as a possible medical mal-practice case against the original infectious disease doc.
I'm not worried about the actual procedure, but I pray that my spinal MRI will be enough of a diagnostic for disability. I pray that the Lyme (and possibly any other tick-borne diseases) show up in the tap to confirm what we already know to be true.
The MRI went well. We could get the results as early as Monday (they said figure sometime between Monday & Wednesday). All I can do is pray that we can use my screwed up spine as a reason for disability.
As for the tap...All I can do is pray for strength, endurance, and REALLY good drugs ;)Monday, November 24, 2008
I have my procedure dates - and they're THIS week!!!!
Oh thank every deity that ever lived! I FINALLY have my dates!!! THIS Wednesday, as in 2 days from now, I will have my spinal MRI with contrast. Then on Friday. THIS Friday, the day after turkey day, I will have my spinal tap!!!
I am SO relieved and excited! Thank God, this is over. I'll be getting my answers soon. This has been hanging over my head for so long, and I could not be happier that not only is there a light at the end of the tunnel, but I am sitting in that light!! Woo hoo!!!!!!!!!!!!!!!!!!!!!!!!! :)
I am SO relieved and excited! Thank God, this is over. I'll be getting my answers soon. This has been hanging over my head for so long, and I could not be happier that not only is there a light at the end of the tunnel, but I am sitting in that light!! Woo hoo!!!!!!!!!!!!!!!!!!!!!!!!! :)
Saturday, November 8, 2008
Today, at the 7th Annual Vegas Valley Book Festival
I was ridiculously excited and nervous. Things went wrong. I kept adjusting my books & flyers because they had to be perfect. Yes, I was in "anal retentive" mode.
I had the most books there as far as number of books we've all actually written. The next closest was a middle-aged man who had 4.
I had one woman come up, a fellow local author, actually. She offered to help. She said that her own survivorhood was something that God was putting in the forefront of her mind. She also said that God told her that she needed to help others. She fully believes that my presence there was to provide a means for her to do that.
I had one woman comment on how great my titles are. Several people commented on the beauty of of all my covers.
I was passed by often. Some people would at least respond when I smiled & said "hi" to them. Others walked past. Several flyers were taken, but not enough to make a real dent in the 115 that I had printed. One woman seemed like she wanted to buy, but then she asked about ordering on-line. She, too, took a flyer.
I saw a woman with an older child come in. She was wearing sunglassses, but they couldn't hide the black eyes underneath. I greeted her when she first came in, she responded, and then browsed through everyone else.
She later returned, and as she was looking at my books, she began to understand what my books were about. She took off her glasses, and displayed her bruises to me. She told me they were inflected last Saturday. We talked briefly. I told her to take as many flyers as she needs, that I was willing and able to help in any way. She began to cry. She thanked me.
Several people had actually thanked me throughout the day, but hers meant the most.
I befriended a few of my fellow authors. We exchanged numbers & e-mails. I also met a fellow author, survivor and chronic Lymie! She was my other big blessing of the day. We just connected. She gave me a copy of her book, and I mine. We'll be in a Lyme support group together, and I know we'll also be talking on survivor issues as well.
I had ZERO sales. None. Not one red penny. Every book, save the one I gave the Lymie, that I brought with me came home with me. And ya know what? I don't care. This day couldn't have gone better. Money's nice, sure. But holding strangers' hands while they cry with me & thank me; raising awareness and education; building more on-line traffic to rapehelp.org; and allowing survivors the opportunity to shop safely and discreetly from home are what today was all about. I'm not here for money, numbers or glory. I CONNECTED with people I never would have met had I not had this opportunity. I don't care if my book sales don't make the New York Times Best Seller List. I do this for PEOPLE. I do this for each and every one of you, for each and every one of those people I met today. I may not get fame and glory by typical US standards, but the connections I made today were a glory far greater than that!
I had the most books there as far as number of books we've all actually written. The next closest was a middle-aged man who had 4.
I had one woman come up, a fellow local author, actually. She offered to help. She said that her own survivorhood was something that God was putting in the forefront of her mind. She also said that God told her that she needed to help others. She fully believes that my presence there was to provide a means for her to do that.
I had one woman comment on how great my titles are. Several people commented on the beauty of of all my covers.
I was passed by often. Some people would at least respond when I smiled & said "hi" to them. Others walked past. Several flyers were taken, but not enough to make a real dent in the 115 that I had printed. One woman seemed like she wanted to buy, but then she asked about ordering on-line. She, too, took a flyer.
I saw a woman with an older child come in. She was wearing sunglassses, but they couldn't hide the black eyes underneath. I greeted her when she first came in, she responded, and then browsed through everyone else.
She later returned, and as she was looking at my books, she began to understand what my books were about. She took off her glasses, and displayed her bruises to me. She told me they were inflected last Saturday. We talked briefly. I told her to take as many flyers as she needs, that I was willing and able to help in any way. She began to cry. She thanked me.
Several people had actually thanked me throughout the day, but hers meant the most.
I befriended a few of my fellow authors. We exchanged numbers & e-mails. I also met a fellow author, survivor and chronic Lymie! She was my other big blessing of the day. We just connected. She gave me a copy of her book, and I mine. We'll be in a Lyme support group together, and I know we'll also be talking on survivor issues as well.
I had ZERO sales. None. Not one red penny. Every book, save the one I gave the Lymie, that I brought with me came home with me. And ya know what? I don't care. This day couldn't have gone better. Money's nice, sure. But holding strangers' hands while they cry with me & thank me; raising awareness and education; building more on-line traffic to rapehelp.org; and allowing survivors the opportunity to shop safely and discreetly from home are what today was all about. I'm not here for money, numbers or glory. I CONNECTED with people I never would have met had I not had this opportunity. I don't care if my book sales don't make the New York Times Best Seller List. I do this for PEOPLE. I do this for each and every one of you, for each and every one of those people I met today. I may not get fame and glory by typical US standards, but the connections I made today were a glory far greater than that!
Friday, November 7, 2008
TOMORROW at the Vegas Valley Book Fesitval!!!
I have a spot to sign & sell my books THIS Saturday from 10 am to 1 pm at the Vegas Valley Book Festival!!!! If you're in the Vegas/Henderson area, I'd love to see you there!!
Vegas Valley Book Festival
Local Author’s Expo
Saturday, November 8, 2008
Fifth Street School
Fourth and Lewis Avenue Downtown
The 7th annual Vegas Valley Book Festival will take place on November 6, 7, 8, 2008 at the Fifth Street School in Downtown Las Vegas. The festival is sponsored by the City of Las Vegas Office of Cultural Affairs, Nevada Humanities, The Review Journal, TARGET and the Las Vegas-Clark County Library District with participation from the UNLV Creative Writing Department, the UNLV School of Architecture Downtown Design Center and Black Mountain Institute. Over 50 authors will be presented in a full schedule of sessions over 3 days. The event is free and open to the public.
I look forward to seeing everyone there!!!! :)
Vegas
Local
Satur
Fifth
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The 7th annua
I look forwa
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